Tuesday, October 19, 2010

Houston Report

It's been a week since our last Houston trip. As always...sorry for taking so long to post. I still do not have my wireless hooked up at our new house (b/c I'm lazy and just have not called the phone company). I have looked up their phone # a couple of times and then start doing something else. O well....one day and I can get to work on the ole laptop again!!

Any who....our Dr. report was not what we were hoping for. The tumors in Alan's lungs have started increasing in size and there were also numerous new spots. So that means....our chemo combination is not working any more. The abdomen and other places are still stable, but not the lungs. Wednesday morning the hospital worked us in for Alan to have a biopsy of one of the spots in the lungs. I'm not going to go in to full detail, but lets just say it was more invasive than we were prepared for and apparently they hit an artery with the VERY large needle. Alan coughed up alot of blood afterwards. He told me later he was really beginning to hate that room. The room they did the biopsy with CT is also the room they did his Vertebroplasty in...neither one great experiences!! With this biopsy they will take it and do a Proteomics test which is where they work with the tissue and do basically different drug combinations or trials on the tissue and see what might work. This is the second time Alan has had this done on his tissue. And can I just add that insurance doesn't pay for this test. I'm not trying to have a poor pitiful me party, but dang....why would they not cover it??!! Why do I feel like insurance controls my life!!! Honestly, I don't even need to get on this subject!! Sorry...had a weak moment, lol.....we should hear something back in about 10 days from the Proteomics test and hopefully get Alan's new chemo started. Right now he is off all chemo so it will all get out of his system before he starts something new. PLEASE say a prayer for Alan. Mentally/Physically things are hard. We always try to keep a positive attitude, but you feel like you work soooo hard and then the blow!! Spiritually, we are great!! Yes, we questions this, but who wouldn't! We know God is in control though.
I guess that's about it! I do want to add this. Even though cancer is so bad, I have to say, it has brought some amazing people into our life. I have met people through my blog and facebook and it's always encouraging to read others stories and just to know you are not alone....esp. the ones that have a similar life to ours....young kids, disability, working full time, cancer....just trying to juggle it all. It's hard....maybe that's why I always look tired and my eyes are always red!! HA

Have a wonderful week!!









2 comments:

Heather @ Cancer Mommy said...

Thinking of you girl! You guys can do this! I am suprised that insurance won't cover it. I am sure you have fought for it. Did you have your case worker at MDA fight for it too? For my biochemo at MDA insurance always rejected it the first time, but then MDA would send something through and get it approved. Because, really, who wants to do this for fun! Pretty sure all the tests we are going through are nescessary! Stupid insurance companies! Huge hugs coming your way girlie!

Melissa McCone said...

Hey Heather...thank you! Actually, I have not sent it in myself yet, but I am going to try. We actually do not go to MDA. Our Dr. is with UT Physicians and we use Memorial Hermann Hospital and Methodist, so I don't actually have a case worker. The girl I usually deal with at our Dr. said I can try and send it in, but they usually do not cover it. And, considering how I am constantly griping about my insurance, I'm sure this will not go in my favor. This is cutting edge stuff. You think insurance would want to help, but NOOOOOO...they just want to make my blood boil and tick me off!!! ughhhh...I mean, we have to have insurance, but crap!!!