Quick recap of last weeks....thought we were starting radiation Monday, but that changed, went to see Dr. Beck Thursday thinking we were starting Sutent, but that changed also.
When we went for our appt. with Dr. Beck, he told Alan that he wanted to send him to Houston to see Dr. Robert Amato. He specializes in RCC and apparently he is #1 in his field in the states. So of course, that is where we want to be. Dr. Beck basically told Alan that yes, he could start him on the Sutent and see how it does and if Alan was a lot older then that is exactly what he would do, but Dr. Beck wants Alan to see Dr. Amato and hopefully he can get a great plan made up for Alan. Dr. Beck can still treat Alan in Little Rock after we get a plan, but he just would rather Dr. Amato get Alan's plan together. Dr. Amato does many interesting test and trials with RCC patients. Can you imagine the look on mine and Alan's face when he said Houston. We just weren't expecting that one. Again, we will go wherever we have to, but it was just another one of those unexpected moments in the crazy roller coaster ride. Dr. Beck said that Dr. Amato might want to do a biopsy of the questionable areas in Alan. Alan's Drs. in LR have not really wanted to do that because of the risk, but Dr. Amato might do it. We just don't have any idea what to expect. All we do know is that we have an appt. at 1:00 in Houston on Monday. Can you believe we got in that quick. No, we are not going to MD Anderson. We will be going to Memorial Herman Hospital. This is the hospital that Dr. Amato is associated with. We will leave tomorrow to head to Houston. The nurse said to plan to stay for 3 days, so I'm planning for 5..:-). Please remember us during our travels and remember our family and our kids. Sydney is really being strong thru all of this and has pretty much just come to terms with our situation.
3 comments:
God be with you guys. There are a lot of people praying for you and your families. It's gonna be ok. Thanks for keeping us all posted. Love, Dan and Judy
just wanted you to know we are thinking about you and praying for you. let us know how things are going!!! i pray you guys get some really hopeful news!! :) big (((hugs))))
Hey guys. Just wanted to check in and let you know we're still thinking about you and praying for you. I pray you will come home with a hopeful new direction. Love to you both. Amber
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